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| PKU, MSUD, and Allied Disorder Resources | > |
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PKU, MSUD, and Allied Disorder |
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PKU, MSUD, and Allied Disorder Resources...
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To enrich the lives of individuals and families of individuals with inherited metabolic disorders by disseminating information, providing supportive activities and encouraging the exchange of ideas.
The Mid-Atlantic Connection
P.O. Box 6086
Lancaster, PA 17607-6086
Phone: 717-872-7546
Email: Info@macpad.org
www.macpad.org
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The National Coalition for PKU and Allied Disorders is a nonprofit organization comprised of individuals, metabolic support groups and professional directly involved with issues related to errors of metabolism requiring low protein diet, including PKU, MSUD, HCU, the OA’s, UCD’s and Tyrosinemia.
National Coalition for PKU and Allied Disorders
www.pku-allieddisorders.org
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A good source for PKU management software, eCookbooks, foods, etc.
www.pkulife.com
info@pkulife.com
www.pkulife.com
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National PKU News is a non-profit organization located in Seattle, Washington. It is dedicated to providing up-to-date, accurate news and information to families and professionals dealing with phenylketonuria.
National PKU News
By Virginia Schuett, MS, RD, Director and Editor
6869 Woodlawn Ave. NE #116
Seattle, WA 98115-5469
Tel: 206-525-8140
Fax: 206-525-5023
Email: schuett@pkunews.org
www.pkunews.org
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Children’s PKU Network (CPN) was founded in 1991 to address the special needs and concerns of individuals with Phenylketonuria (PKU) and their families.
Children’s PKU Network
3790 Via De La Valle, Ste 120, Del Mar, CA 92014
Phone: (800) 377-6677
Fax: (858) 509-0768
Email: pkunetwork@aol.com
www.pkunetwork.org
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The MSUD Family Support Group is a non-profit 501 (c)(3) organization for those with MSUD and their families and includes health-care professionals and others interested in MSUD.
MSUD Family Support Group
www.msud-support.org
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Disclaimer: Ener-G Foods, Inc. does not verify, validate or maintain any information contained on any linked website. These links are provided to you solely as a convenience and resource for additional material. |
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| | | | New Low Protein Classics! | | | |
| | | | Ener-G Pastas | Ener-G Foods has discontinued carrying all of the Brown Rice Pasta line, all of the Low Protein Pasta line, as well as the White Rice Tagliatelle, Cannelloni, Garden Rotini and Large Shells. We would like to apologize for any inconvenience this may cause.
Still available are the Ener-G White Rice Pastas (not for low protein diets) | | |
| | | | Wholesale Customers... | Special online offer for wholesale customers. Get wholesale ordering information and forms. Click here for details | | |
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